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Measuring Interaction and Communication in Autism
Study Site: University of Kansas
Region: Midwest USA (ND, SD, NE, KS, MN, IA, MO, WI, MI, IL, IN, OH)
Participation: Remote/Online Study
Dates: 05/01/2024 - 05/31/2025
This study is hoping to learn more about how autistic children who use minimal speech (i.e., mouth words) communicate during natural interactions at home with their caregivers. Specifically, we want to learn about moments where caregivers and their children are “in sync”, or are communicating back and forth, and the factors that are likely to promote being “in sync”. We believe that this work will help us better understand how social interaction can be shaped during everyday activities, play, or in therapy. Results from this project have implications for understanding development of social interaction skills in autism and for intervention strategies that utilize synchrony as an active ingredient.
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Predicting & Optimizing Language Outcomes in minimally verbal children with autism
Study Site: Boston University, Center for Autism Research Excellence
Region: Northeast USA (ME, MA, NH, VT, RI, PA, MD, CT, NY, NJ )
Participation: In-person participation required
Dates: 02/02/2022 - 02/02/2025
POLO seeks to clarify and understand the difference between: Children with Autism Spectrum Disorder who start with significant language delays but make gains during early school years (“late bloomers”), and children with ASD who remain minimally verbal.
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SPARK
Study Site: Yale Child Study Center
Region: Northeast USA (ME, MA, NH, VT, RI, PA, MD, CT, NY, NJ )
Participation: Remote/Online Study
Dates: 03/01/2024 - 02/28/2025
SPARK is an autism research study and a growing community of autistic individuals, their families, and researchers on a mission to advance the understanding of autism. SPARK’s mission is to improve the lives of people with autism by identifying the causes of autism and informing more effective therapies, treatments, services, and supports.
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UCSF Speech Voice and Communication Study
Study Site: Neurodevelopmental Assessment and Imaging Laboratory, University of California-San Francisco
Region: West USA (CA, OR, WA, NV, ID, MT, WY, UT, CO, AK, HI)
Participation: In-person participation required
Dates: 04/05/2024 - 05/01/2025
The goals of this study are to identify the specific barriers to speech or the causes of difficulties with speech and other forms of communication. The study involves autism diagnostic and neuropsychological testing and brain imaging (MRI and MEG). Our dedicated team will provide support for participants who may have difficulty completing any of the study tasks but would like to attempt them. The study is completed typically in 4-5 visits and pays up to $400. This study is approved by UCSF IRB #21-33613.
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Uncovering Communication Potential in Minimally Verbal Autism Spectrum Disorder
Study Site: Lurie Center For Autism
Region: Northeast USA (ME, MA, NH, VT, RI, PA, MD, CT, NY, NJ )
Dates: 03/01/2024 - 03/07/2025
What we are studying In this study, we are characterizing and modeling communication in individuals with autism spectrum disorder who are minimally verbal (mv-ASD). We are doing so by using on-body and off-body devices to measure communication patterns including facial fine motor movements and vocalizations. Why it is important There is a huge gap in the application of technologies in helping individuals with mv-ASD learn to speak, discover their own voice, or communicate.The long term goal of this research is to develop technologies to promote communication in individuals with mv-ASD. What we hope to accomplish The hope is to develop technologies to help individuals with minimally-verbal ASD communicate more effectively.
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