Resource Network

Aurora Behavioral Health Specialized Needs Unit

Service Type: Specialized Inpatient Unit

Offers a special needs behavioral health unit for children and adolescents with intellectual and developmental disabilities.

Autism Commission on Quality

Service Type: Applied Behavior Analysis

The Autism Commission on Quality's (ACQ) mission is to continuously improve the impact of applied behavior analysis services for the autism community through education and accreditation of provider organizations. Autism Commission on Quality is a ACQ is a mission-driven non-profit accreditation body for organizations offering applied behavior analysis services to individuals and families affected by autism. Our mission is to continuously improve the impact of applied behavior analysis services for the autism community through education and accreditation of provider organizations.

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Autism Treatment Center

Each person in our program follows an individualized, comprehensive learning program designed by a team of teachers, personal care assistants, administrators, various specialists/consultants, and the individual receiving services and their parent or guardian. This approach allows for small group settings, a structured environment, on-going assessments, parent training, year-around services, and an atmosphere of acceptance and motivation. By providing a lifetime of services and support 24/7/365, ATC is changing lives and building brighter futures for children and adults with autism.

Becoming rentABLE

Service Type: Profound Autism Friendly Business

Certified Accessible Short-Term Rentals in the U.S. and Canada

Bradley Hospital-Center for Autism and Developmental Disabilities (CADD)

Service Type: Specialized Inpatient Unit

Highly specialized clinical services for children and adolescents between 2 and 18 who show signs of serious emotional and behavioral problems in addition to a developmental disability.

C.M. Mott Children’s Hospital

Service Type: Specialized Inpatient Unit

Facility sees DD patients on the Child and Adolescent Psychiatric Unit.

Cambridge Health AllianceNeurodevelopmental Disorders Unit (NDU)

Service Type: Specialized Inpatient Unit

Specialty service for children and youth with a primary diagnosis of autism spectrum disorder, intellectual disability, or a related neurodevelopmental disorder, who are also experiencing serious behavioral or mental health challenges that have not responded to other levels of care.

CASP Health Insurance Appeals Guide

Health insurance played almost no role in the treatment of autism before the turn of the century. Although autism was (and still is) a health condition diagnosed by a physician or psychologist pursuant to the Diagnostic and Statistical Manual of Mental Disorders, the health insurance industry left to other systems the financial burden of autism treatment. All of that changed with the enactment of autism insurance mandate laws throughout the first two decades of the 21st century. States mandated that health insurers bear the costs of evidence-based autism treatment for an individual properly diagnosed by a physician or psychologist. This autism insurance reform movement reshaped the entire landscape of autism treatment, in particular Applied Behavior Analysis (ABA), by framing the funding of treatment in terms of medical necessity. Autism service providers learned a new language, created new “insurance manager” positions within their businesses, and embraced a whole new way of thinking about funding for autism services. In this environment, the importance of understanding and pursuing appeals of denied claims has never been greater. A successfully appealed claim can make the difference between ongoing treatment for an individual with autism and unreached potential due to an inability to afford treatment. With a keen understanding of the importance of insurance appeals to families and providers, The Council of Autism Service Providers releases this Guide to set forth clear information that consumers and treating providers need to know when appealing denials of autism services. This Guide was written by leading health insurance experts to help educate individuals about their appeal rights and explain the steps in the appeals process. As part of the efforts to promote health equity, federal and state regulations have been adopted to promote due process for patients who have been denied care because an insurer will not authorize medically necessary coverage or has otherwise made adverse benefit determinations. Unfortunately, the goals of the insurance appeals process are undermined when patients and their treating providers are not aware of their appeal rights and how to best leverage the internal and external appeals systems to try to get medically necessary care covered. Even when patients and providers understand their appeal rights, health plans may still uphold their denial of care. In addition to this Guide, CASP offers training that further providers’ understanding of the appeals process when there is a denial of care for autism. More information is available on the at www.casproviders.org. A special thanks to The Kennedy Forum, Denials Management and Schooner Strategies for helping develop this Guide. If you would like to file a parity complaint, please go to www.parityregistry.org. Please also see CASP’s other resources for providers, funders, and families, which include the CASP ASD Practice Guidelines for Healthcare Funders and Managers, and the CASP Practice Parameters for Telehealth Implementation of Applied Behavior Analysis.

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Children’s Hospital Colorado Neuropsychiatric Special Care Unit

Service Type: Specialized Inpatient Unit

Treats children and adolescents with an intellectual or developmental disability, who are experiencing a behavioral or mental health crisis.

Cincinnati Children’s- Kelly O’Leary Center for Autism Spectrum Disorder

Service Type: Specialized Inpatient Unit

Provides specialized diagnostic, consultative, and short-term treatment options when your child is diagnosed with ASD.

Council of Autism Service Providers

Service Type: Other Community

The Council of Autism Service Providers (CASP) is a non-profit trade association of provider organizations serving individuals with autism spectrum disorder. CASP member organizations provide services in many different settings utilizing a variety of funding streams. CASP represents the autism provider community to the nation at large including government, payers, and the general public. CASP serves as a force for change, providing information, delivering education, and promoting standards that enhance quality.

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Crossroads Continuum

Service Type: Specialized Autism Center, Caregiver Training, Specialized School

Crossroads Continuum is a non-profit, multi-service organization dedicated to enhancing the quality of life for individuals with autism and related disorders from birth through adulthood. For more than 20 years, we've served individuals with autism with personalized, evidence-based services and supports. Our continuum of programs meets the needs of individuals of all ages and abilities. The organization was originally established in 2002 as a school providing individualized, comprehensive education and related services. Crossroads Continuum now works with individuals of all ages and their families in their homes, communities, and other settings.

Dr. Isabelle Chase, DDS

Vast experience providing pediatric dental services at Boston Children’s Hospital. Dr. Chase has an excellent understanding of children with Autism, coaches and directs her support staff accordingly, builds rapport and trust with her patients, and is willing to take the time to make kids comfortable with the exam process.

EPIC Inclusive Communities

Essential Family Services LLC

Individuals that we serve have a variety of intellectual disabilities some of which do have profound autism in which they will require supports for the rest of their lives. Sometimes there autism is also comorbid with other disabilities that we assist them in caring for as well.

Foundations Behavioral Health The Autism Spectrum Disorders and Neurodevelopmental Inpatient Psychiatric Hospital

Service Type: Specialized Inpatient Unit

Delivers acute care to children and adolescents ages 5 and older identified as having an ASD and/or related disability with co-morbid psychiatric conditions.

Generally Accepted Standards of Care for Applied Behavior Analysis

Resource Type: Book

Service Type: Applied Behavior Analysis

ABA Practice Guidelines (Version 3.0) The purpose of these practice guidelines is to inform decision making regarding the use of ABA as a medically necessary, efficacious, and cost-effective treatment to develop, maintain, or restore, to the maximum practicable extent, the functioning of individuals with ASD. These practice guidelines are based on the best available scientific evidence and expert clinical opinion regarding the use of ABA as a behavioral health treatment for people diagnosed with ASD. The guidelines are intended to provide a concise, user-friendly introduction to the delivery of ABA services for ASD and to reflect consensus standards for the effective practice of these services. They are written for healthcare funders, agents of government health programs and private health insurance plans, regulatory bodies, consumers, and ABA practitioners and employers. These practice guidelines provide information about standards of care in ABA that should be used in planning, implementing, and evaluating assessment and treatment services. As a behavioral health treatment, ABA includes many distinctive clinical and delivery components. It is important for all stakeholders, including those receiving and providing services, coordinating care, administering funding, or building provider networks, to understand the essential elements of ABA.

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Hospital for Special Care-Autism Inpatient Care

Service Type: Specialized Inpatient Unit

Designed to care for individuals who are displaying severe and treatment-resistant behavioral disorders, or have experienced a decline in their usual level of psychiatric functioning.

Kallen K. Hull DMD

Service Type: Dentist

Kennedy Krieger InstituteNeurobehavioral Unit (NBU)

Service Type: Specialized Inpatient Unit

16 bed inpatient unit dedicated to the assessment and treatment of children and young adults with severe and treatmentresistant behavior disorders and DDs.

Laurel Heights- Acute Inpatient Psychiatric

Service Type: Specialized Inpatient Unit

Some of the patients who receive psychiatric care at our facility present with comorbid Autism Spectrum Disorder or other neurodevelopmental disorders, and our highly trained staff are uniquely qualified to help these patients get the compassionate, comprehensive care they need.

Marcus Autism Center

Service Type: Specialized Autism Center

As one of the largest autism centers in the U.S., Marcus Autism Center offers families access to the latest research, comprehensive testing and science-based treatments.

Mission for Educating Children with Autism

Nashoba Learning Group

Service Type: Specialized Autism Center

NLG was founded in 2002 to offer a different life trajectory for individuals with Autism. Today NLG’s School provides outstanding, individualized education, training, and intervention services for students 3-22 with Autism Spectrum Disorders. NLG’s Adult Program opened in 2013, providing ongoing support to adults with Autism.

National Autism Law Center

Resource Type: Website

The National Autism Law Center's mission is to enforce and expand the legal rights and protection of individuals with autism, providing support for them and their families, as well as the service providers and attorneys who assist them.

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Nationwide Children's Behavioral Health Pavilion

Service Type: Specialized Inpatient Unit

Not specific to ASD or IDD, but will help any child in crisis.

NonBinary Solutions & Knowetic.ai

Our software is designed to help build treatment pathways specific to individual needs, including profoundly affected individuals.

Nova Support Services

Group home provider for adults with dd waiver

Profound Autism Village

Service Type: Other Community, Caregiver Training, Sensory Resources, Sleep Resources, Toileting Resources

Welcome to Profound Village - a private community of professionals and caregivers sharing resources and their lived experience with Profound Autism.

RiverValley Behavioral HealthShort-Term Autism Treament and Evaluation Program (STATE)

Service Type: Specialized Inpatient Unit

Inpatient care for children and adolescents diagnosed with ASD.

Sagamore Children’s Psychiatric Center- The Intensive Treatment for Children with Autism and Neurodevelopmental Disorders (ICAN)

Service Type: Specialized Inpatient Unit

Treats people ages 10-18. This program gives children with co-occurring neurodevelopmental disorders a high level of structure, consistency, and predictability.

Seattle Children’s Hospital, Psychiatry and Behavioral Medicine Unit, Biobehavioral Inpatient Program

Service Type: Specialized Inpatient Unit

Specialized inpatient program serving youth ages 4-17 with severe intellectual and developmental disabilities with mental and behavioral health concerns, housed within the larger inpatient psychiatry unit.

Society for Developmental and Behavioral Pediatrics

Service Type: Developmental/Behavioral Pediatrician

The Society for Developmental and Behavioral Pediatrics was founded in 1982 by a small group of forward-thinking pediatricians and their colleagues. SDBP is now an interprofessional organization dedicated to improving the developmental and behavioral health of children by providing exceptional leadership and promoting research, education, advocacy, and practice. SDBP advocates for an integrated approach to the biological, psychological, social, educational and cultural influences on children, youth, and their families.

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StoneCrest Center- Mental Illness/Developmental Disability Program (MIDD)

Service Type: Specialized Inpatient Unit

133-bed psychiatric treatment center for adolescents, adults, and seniors who are in need of specialized behavioral healthcare services.

Streamwood Hospital- Behavior Intervention Unit

Service Type: Specialized Inpatient Unit

Dedicated to providing evidence based treatment to children and adolescents (4-17 years), diagnosed with ASD.

Summit Adaptive Sports, Inc.

At Summit Adaptive Sports, our goal is to foster a healthy lifestyle through outdoor sports for individuals with disabilities in a fun, accessible and inclusive environment. Under our carefully trained volunteers, athletes will have access to programs that provide skills training, social experiences, and confidence. Autism specific training for our volunteer Coaches is conducted by Scott Roderick (founding board member) M.A., BCBA, LBA, LABA and Karen Cook, mother of 28 year old son with profound autism. Autism specific training is required of all volunteers and staff yearly and is also ongoing. Experienced volunteers mentor new volunteers for several months. All lessons are individualized with independence, to the greatest extent possible, always the goal as individuals gain experience in outdoor sports. We are committed to coaching individuals to reach their fullest potential.

Taproot Behavioural Consulting Inc.

Taproot is a small consulting company run by two BCBAs with decades of experience providing services to individuals with profound autism including direct treatment and family support. Our consultants each also have 10 to 20 years of experience in this area.

The Autism Project

The Autism Project, based in Johnston, Rhode Island, is a non-profit organization committed to improving the lives of children and adults with developmental disabilities, including those diagnosed with profound autism. Our services include professional training, parent education and coaching, Social Groups, a Summer Camp, and Adult Programming designed specifically for individuals on the autism spectrum. In 2024, we supported 126 individuals with profound autism across our social programs from 5 years old to 34 years old. Our Social Groups focus on enhancing social interaction and communication skills for children, teens, and young adults with autism spectrum disorder (ASD), emotional regulation challenges, or related communication disorders. These groups are led by highly trained professionals, including speech-language pathologists, occupational therapists, and mental health practitioners, and are supported by educators and staff trained in best practices for working with individuals with ASD. This year, TAP introduced a new group for members using AAC devices. The group is unique since everyone, including staff must use a device. The intent is to level the field for all. Staff gained insight into what it’s like for the conversation to move on before you finish your thought. How hard it is to keep up with the conversation as you form your answer. Members of the group increased their usage of their individual device in this group, as well as other groups they participated in. Camp WANNAGOAGAIN! is another key program, offering participants the chance to engage in real-life experiences, learn new leisure skills, and form friendships in a structured and supportive environment. The camp is staffed by experienced professionals who understand the unique needs of individuals with severe and profound autism. In 22 years, no camper has been sent home! It’s not always easy, but staff knows how important it is to problem solve in real time to keep a camper safe and content. It’s camp. It’s their camp and it’s our job to bring the supports, interests and compassion to keep the camper engaged and ready to come back the next day. Our Adult Programming, known as Unity Community, is tailored for autistic adults and focuses on fostering friendships and creating memorable social experiences. Among the various groups we support, our profound autism group meets in person on Mondays and Wednesdays from 10:30 a.m. to 12:30 p.m. During these sessions, participants engage in physical activities suited to their abilities, contribute to the upkeep of a community garden, and undertake tasks such as mail delivery, organizational work, and maintaining the group room. These activities are guided by the lead facilitators who ensure that the programming is both meaningful and supportive of the individuals' growth and development. TAP’s commitment to individuals with profound autism spans 30+ years. Our staff brings years of classroom experience and passion to improve the lives of all autistic people. TAP is the only organization in Rhode Island with ongoing social groups (31 weeks each year) and a summer camp (3 weeks) where all are welcomed and supported to ensure their successful participation and learning. This is our 21st year. To accomplish this, TAP uses an incredibly detailed application. Staff educates caregivers that we need to know strengths and challenges so we can build a staff to meet the individual’s needs. We do not want any surprises in the woods at camp! For some it means being in a parallel group as they familiarize themselves with the building, staff and routine. Each week spending a little more time with the group until they are ready. For some it’s a matter of weeks, for others, months. That is okay. The goal is to make the experience a comfortable and stress free for the member and their family. The goal is to have people come BACK! TAP’s Family Support Specialists are also available to coach families with evidence-based strategies, resources, and school concerns. They are all parents of individuals with autism and receive extensive training on strategies for support as well as how to be there for a caregiver across the lifetime for support, information, and encouragement. FSS team members do individualized training for caregivers across the lifetime. Our professional training department lead trainer is a master level educator with over a decade of experience teaching students with profound autism in New England and Italy.

The Insurance Resource Center

Service Type: Caregiver Training

Resources for consumers, providers, clinicians, employers, and educators on issues related to medical insurance for autism and behavioral treatments.

The Summit Center, Inc.

University of Pittsburgh School of Medicine Western Psychiatric Hospital- Specialized Inpatient Services for Children and Adolescents

A specialized inpatient unit available for children and adolescents having acute behavioral and emotional problems, and who have ASD, intellectual disabilities, and other DDs.

UNSEEN (Caregiver Documentary)

Service Type: Other Community

About the Documentary Unseen follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical and mental health. It’s a common story among parent caregivers: the isolation, uncertainty about the future, lack of options, and a never-ending daily to-do list means the role of caregiver overpowers nearly every other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health and policy/legal experts provide a broader view on the societal impacts. Through the power of unfiltered, compelling human stories, Unseen cultivates compassion and tangible support for the caregivers in our communities.

Upstate Caring Partners

Yes. We provide day and residential services for New York State residents with profound autism across the lifespan.

Utah Autism Academy

Utah Autism Academy (UAA) is designed to offer center, home and community based intensive therapeutic interventions and instruction for individuals across the range of the autism spectrum and their families. Each program and treatment plan is individually developed by a collaborative team of professionals to create an optimum learning environment for a broad spectrum of ability. UAA also serves as a facility for training and developments of higher education students and professionals to grow in the field of behavior modification therapies and autism related careers.