Now more than ever, we must be part of the conversation in Washington, D.C., and state capitols nationwide. Legislators and regulators need to understand the realities of living with the kind of autsm that requires lifetime, round-the-clock care. To address this, we are building a network of advocacy leaders from every corner of the United States. Please consider joining our efforts.
As part of our Profound Autism Advocacy Network:
Join the profound autism advocacy network
The Profound Autism Advocacy Network met on August 5, 2026 to go through the IACC's 2026-2028 Draft Strategic Plan together. There's real progress in this draft. There are also real gaps that need to be fixed before it's finalized.
The plan proposes $357 million in new funding. Neurodevelopmental regression got its own dedicated section and a $57 million line. Profound autism, despite being named 45 times in the plan, got zero dedicated dollars.
Submit your public comment directly to the IACC by August 20, 2026 at 5:00 PM ET via email to [email protected].
Only comments submitted directly to the IACC count toward the official public record. Sharing this video helps raise awareness, but it does not submit a comment for you.
Questions? [email protected]
Eight ways we believe the Interagency Autism Coordinating Committee's Draft Strategic Plan can go further, and how you can help. Download our one-pager and submit your comment directly to the IACC by August 20, 2026 at 5 PM ET.
Download Our One-Pager
