Eight ways we believe the Interagency Autism Coordinating Committee's Draft Strategic Plan can go further, and how you can help. Download our one-pager and submit your comment directly to the IACC by August 20, 2026 at 5 PM ET.
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Research
June 26, 2026
Siblings of people with profound autism experience unique realities often unseen by those around them. The Profound Autism Alliance Sibling Action Group was created by siblings for siblings and works to provide connection and practical solutions.
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Families living with profound autism and those who provide services and supports to them frequently live in the shadows. At Profound Autism Alliance, our hope is to bring these stories into the light. We will do so by sharing them in a way that is always respectful and protects the dignity of those living with profound autism.
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