When people with profound autism are not included or clearly defined in research:
Service systems fail to plan for their needs
Workforce training does not prepare clinicians for real-world challenges
Funding and policy decisions lack reliable evidence
By clarifying who we mean by “profound autism” and advocating for intentional inclusion, research can begin to reflect every part of the autism spectrum and every level of support need.
We’re collecting input from the profound autism community to better understand needs, priorities, and experiences. If you have a few minutes, please take the survey below that best fits you.
INSAR Profound autism special interest group survey
Thank you for taking the time to inform our advocacy and work nationwide.
Last updated January 21, 2026
