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Profound Autism Sibling Action Network

Siblings of people with profound autism experience unique realities often misunderstood by their friends and other family members.

They have widely different perspectives, possess different skills, and come from diverse backgrounds. Siblings of people with profound autism also frequently lack clarity about what the future holds for them and their siblings with profound autism. 

Our Sibling Action Network will work to fill this void and provide practical information and resources developed by siblings for siblings.

Voices of Siblings: Insights on Profound Autism: Amy Ursitti, Cassie Stevens, Fernanda Castellon, PhD

Thank you to ECHO Autism Communities for highlighting sibling voices at their 2025 Symposium. 

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Sibling Hill Day 2025

Profound autism siblings--join us for our annual Sibling Hill Day on Monday, July 14th! We will be meeting with our legislators to share our stories as siblings of individuals with profound autism and to discuss current legislation that impacts our siblings' lives. You can participate in person or virtually. Please RSVP below!

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Join the Sibling Action Network

Are you the sibling of someone with profound autism who is interested in becoming involved in our Sibling Action Network? Fill out our interest form at the link below or email us at [email protected]!

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