They have widely different perspectives, possess different skills, and come from diverse backgrounds. Siblings of people with profound autism also frequently lack clarity about what the future holds for them and their siblings with profound autism.
Our Sibling Action Network will work to fill this void and provide practical information and resources developed by siblings for siblings.
Thank you to ECHO Autism Communities for highlighting sibling voices at their 2025 Symposium.
Watch HereProfound autism siblings--join us for our annual Sibling Hill Day on Monday, July 14th! We will be meeting with our legislators to share our stories as siblings of individuals with profound autism and to discuss current legislation that impacts our siblings' lives. You can participate in person or virtually. Please RSVP below!
RSVP HereAre you the sibling of someone with profound autism who is interested in becoming involved in our Sibling Action Network? Fill out our interest form at the link below or email us at [email protected]!
Join UsSiblings of autistic people who need lifetime, 24/7 care have unique experiences that are often overlooked. We can learn a great deal through the experiences that they have to share.
Here are some examples of the valuable perspectives they bring:
INSAR 2025 Recap: Lauren Jones
INSAR 2025 Recap: Cassie Stevens
Profound Autism Summit 2025: Rose Porta's Experience
Profound Autism Day 2025: Refections from Emily and Sarah Rakers
Caring For My Brother After Loss: Nancy B
.
INSAR 2024 Takeaways from PAA Cofounder, Amy Ursitti
Giacomo Vivanti on Progress, Steps Backward, and the Reconciliation of Conflicting Narratives
Siblings of autistic people who need lifetime, 24/7 care have unique experiences that are often overlooked. We can learn a great deal through the experiences that they have to share.
Here are some examples of the valuable perspectives they bring:
INSAR 2025 Recap: Lauren Jones
INSAR 2025 Recap: Cassie Stevens
Profound Autism Summit 2025: Rose Porta's Experience
Profound Autism Day 2025: Refections from Emily and Sarah Rakers
Caring For My Brother After Loss: Nancy B
.
INSAR 2024 Takeaways from PAA Cofounder, Amy Ursitti
Giacomo Vivanti on Progress, Steps Backward, and the Reconciliation of Conflicting Narratives