Profound Autism Advocacy

We are building a formidable alliance to engage in positive, effective, ongoing federal and state advocacy.

Members of Congress regularly make decisions that affect people with profound autism and their caregivers. Unfortunately, most have never even met someone with profound autism and have little understanding of the struggles and isolation people with profound autism experience.

Profound Autism Alliance’s consistent presence on Capitol Hill will establish our community as one that makes meaningful change occur.

Senate Appropriations Includes Profound Autism Focus

We are greatly encouraged that the Senate Appropriations Committee included language requiring the inclusion of profound autism in federally funded research. This would not have happened without the thousands of messages you sent over the last year. Stay tuned as we continue to advocate for the use of these five essential words—including those with profound autism—in federal and state legislation and regulation moving forward. Clarity leads to meaningful progress, and this is an excellent step in that direction.

Read The Report Here

Last updated August 4, 2025. Please check back often.

As part of our Profound Autism Advocacy Network:

You will build relationships with other advocates from across the country.
We will provide ongoing training, resources, and support.
You can participate virtually in most instances, which is perfect for caregivers who find it hard to get out of the house.

Join the profound autism advocacy network