There is a great deal of discussion in the nation's capitol about autism. At Profound Autism Alliance, our ongoing focus is on the health and connection of autistic people who require lifetime, 24/7 care. Inclusion of this population - those with profound autism - in research is absolutely critical. We are grateful for the growing recognition of our population in the reauthorization of Autism CARES, subsequent appropriations report language, and other federal and state activities. Every week, we advocate in Washington, D.C., to ensure ongoing recognition and inclusion. Now more than ever, we intend to keep going.
Download Our One-Pager HereFamilies living with profound autism and those who provide services and supports to them frequently live in the shadows. At Profound Autism Alliance, our hope is to bring these stories into the light. We will do so by sharing them in a way that is always respectful and protects the dignity of those living with profound autism.
Share Your StorySiblings of people with profound autism experience unique realities often unseen by those around them. The Profound Autism Alliance Sibling Action Group was created by siblings for siblings and works to provide connection and practical solutions.